This afternoon I went to the 3:30 showing of Indiana Jones and the Kingdom of the Crystal Skull. I picked this weekday afternoon showing because it had a low risk of loud obnoxious kids ruining the expensive experience for me. (And I was right, I shared the theater with one other person.) I’m glad that that I saw it on the big screen, but it wasn’t nearly as satisfying as the Raiders Of The Lost Ark.
As much as I wanted to savor my movie experience in peace, how much more important might it be to avoid disruptive children at a religious service? We do expect parents with babies to move to the foyer or the crying room when their child becomes restless and loud.
Ought we to expect this for all children? Would you feel the that way if you knew the disruptive child involved suffered from a brain disorder? Where would you draw the line?
I ask because I read this morning about a more than six-feet-tall, 225 pound 13-year-old Autistic boy who has been banned from the regular Mass at his family’s Catholic Church in Bertha, Minnesota. And the family is angry.
The northern Minnesota church has obtained a restraining order to keep Adam away, an action that has been deeply hurtful to the Race family and has brought them support from parents of other autistic children.
“My son is not dangerous,” Carol Race said. The church’s action is “about a certain community’s fears of him. Fears of danger versus actual danger,” she said.
In court papers, church leaders say the danger is real. The Rev. Daniel Walz wrote in his petition for the restraining order that Adam — who already is more than 6 feet tall and weighs more than 225 pounds — has hit a child, has nearly knocked over elderly parishioners while bolting from his pew, has spit at people and has urinated in the church.
“His behavior at Mass is extremely disruptive and dangerous,” wrote Walz. “Adam is 13 and growing, so his behaviors grow increasingly difficult for his parents to manage.”
I’ve gotten in trouble before talking about issues around Autism Spectrum Disorder. Symptoms and behaviors vary greatly from child to child. Some are meek. Some are violent. Some are a danger to themselves and those around them. Some are brilliant. Some lack any hint of social skills the ability to interact. Generalizations are impossible.
The only common thread I’ve observed are the parents. The exhausted, frustrated parents. Parents who get no answers and cope the best they can with children that don’t get better.
For whatever reasons — and there are many, many theories — the number of children diagnosed with Autism Spectrum Disorder is growing at a horrible rate. A Center For Disease Control report in 2007 estimated the numbers to be 1 in 150 children in the United States.
I can’t begin to imagine how that number must terrorize new parents.
For my part, I think that Rev. Walz and the leadership of St. Joseph made the correct decision. But that doesn’t mean I feel good about it.
As a nation we have come to grips with physical disabilities, going so far as to make the American with Disabilities Act law more than a decade ago. But a person in a wheelchair or with visual impairments may communicate and interact in socially appropriate ways.
What can society do with an individual when that is not the case?